| Description |
Spina Bifida is the most common permanently disabling birth defect in the United States. Every day, about eight babies born in the US have Spina Bifida or a similar birth defect of the brain and spine. Scientists believe that genetic and environmental factors act together to cause the condition. Due to advances in medical and therapeutic interventions, children born with Spina Bifida are able to fully participate in family and community life. Assistive technology can play an important role in aiding that participation and is often part of a family's Individualized Family Service Plan.
This two hour workshop is designed to address the unique needs of children and families entering EI due to their child's diagnosis of Spina Bifida. Topics include: overview of SB - types, causes, incidence, testing, common health issues, facts vs. myths, supporting parental reactions to diagnosis, overview of developmental patterns of progress, national and local level resources, and supporting parent professional decision making with early intervention principles.
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